Dan Shockley’s Story with Colon Cancer and AFAP

Dan Shockley, a retired Navy veteran and colon cancer survivor, embodies resilience, advocacy, and determination. Diagnosed with a rare genetic condition, Attenuated Familial Adenomatous Polyposis (AFAP), his journey is an inspiring testament to the power of a positive attitude and unwavering purpose. Shockley’s story sheds light on the importance of early detection, the role of genetics in cancer, and the legacy of Dr. Henry T. Lynch, the pioneer of hereditary cancer research.

As Dan often says, Always forge ahead with a purpose! — words that encapsulate his mission to educate others about hereditary cancers and inspire hope.

A Life of Service and Strength

Before his diagnosis, Dan Shockley dedicated 22 years of his life to the U.S. Navy. Serving in pivotal operations like Desert Storm, Enduring Freedom, and Iraqi Freedom, he demonstrated mental and physical fortitude in challenging circumstances. Reflecting on his military career, Dan credits his ability to adapt and overcome adversity as key to his success, both in service and in his personal battle with cancer.

“Preparation is significant in achieving mission readiness,” Dan says. “Challenges are opportunities, and being prepared along with a positive outlook are the keys.” These principles would later guide him through his diagnosis and life-changing surgery.

The Diagnosis: Attenuated Familial Adenomatous Polyposis (AFAP)

Dan’s health journey took a turn in 2012 during a routine colonoscopy at the age of 51. What seemed like a standard procedure revealed over 100 polyps throughout his colon, rectum, and anus, along with a large mass causing an 80% blockage in his transverse colon. Further genetic testing confirmed that Dan had AFAP, a rare mutation of the APC gene that increases the risk of developing colorectal cancer.

You can find Dan’s pathology images throughout the article!

AFAP, a subtype of Familial Adenomatous Polyposis (FAP), is exceedingly rare, affecting less than 0.03% of the global population. While classical FAP often results in thousands of polyps, AFAP presents with fewer polyps, though the risk of cancer remains significant. For Dan, his genetic mutation necessitated a total proctocolectomy with ileostomy—a surgery to remove his colon, rectum, and anus. Without this intervention, the risk of developing colon cancer was 100%.

We recommend you read our article on Cancer Biology to dive deeper into it!

Dan embraced the diagnosis with his characteristic positivity. “I tend not to think about things I can’t control,” he shares. “What I can control is my attitude, and that has brought me far in life.”

A Partnership with Dr. Henry T. Lynch

Dan’s journey introduced him to Dr. Henry T. Lynch, the founding father of hereditary cancer research. Dr. Lynch’s groundbreaking work in identifying AFAP and other hereditary cancer syndromes has saved countless lives. Dan had the privilege of meeting Dr. Lynch in 2013 during his lecture at the University of Hawai’i Cancer Center. Their connection went beyond patient and researcher; Dr. Lynch actively followed Dan’s progress and provided invaluable insights into his care.

Dr. Lynch’s legacy remains integral to Dan’s advocacy efforts. As Dan reflects, “Dr. Lynch’s research was transformative, and I’m honored to continue his mission by raising awareness about hereditary cancers.”

Life After Surgery: Advocating for Awareness

Dan’s surgery in July 2012 marked the beginning of a new chapter. With the help of a prosthetic medical device for waste collection, he adapted to life as an ostomate. Viewing challenges as opportunities, Dan turned his experience into a platform for advocacy. He has worked tirelessly to raise awareness about hereditary cancers, AFAP, and the importance of early detection.

Some of Dan’s notable advocacy efforts include:

• Securing proclamations for Colorectal Cancer Awareness Month and Ostomy Awareness Day in Hawaii.
• Collaborating with organizations like the Colon Cancer Alliance, United Ostomy Associations of America (UOAA), and the National Organization for Rare Disorders (NORD).
• Sharing his story through presentations, articles, and educational initiatives.

Dan’s advocacy extends internationally, connecting with support groups and researchers to shed light on rare conditions like AFAP. His mantra remains consistent: Adapt, improvise, and overcome.

Dan’s mission includes educating medical students about hereditary cancer syndromes. By sharing his live-case presentations and personal journey, he aims to inspire the next generation of healthcare professionals to prioritize early detection and genetic counseling.

Words from Dan Shockley

I wanted to share what my primary care doctor, recently told me. He said “Daniel, in your previous life you had a deal w the gatekeeper. You said, when I come back, stand aside, I got this!”, born and raised in India was a infectious disease control doctor in Northern California the past 35 years. He recently left private practice to join the Northern California Veterans Health Care System.

The Legacy of Resilience and Hope

Dan Shockley’s journey is a powerful reminder of the importance of awareness, advocacy, and attitude in the face of life’s challenges. Through his unwavering faith, military discipline, and dedication to educating others, Dan has turned his diagnosis into a mission of hope and empowerment. His efforts honor the legacy of pioneers like Dr. Henry T. Lynch and pave the way for future advancements in hereditary cancer research.

Dan’s story encourages us all to take charge of our health, seek early detection, and embrace the challenges life throws our way. As he so aptly says, Always forge ahead with a purpose.

Special thanks to Mr. Dan Shockley for providing us with this monumental story and his pathology images!

You can contact him through his LinkedIn profile!